Friday, February 12, 2010

Mikeal has Hypothyroidism

Google is my worst enemy today...

A few weeks ago Mikeal told me that he was having passing out spells, three total that we're aware of to be exact, since around Christmas. Because of him starting wrestling around the same time that these things were going on I at first chalked it up to dehydration. We hydrated him, things seemed to be "fine", but then again there was no specific rhyme or reason to the black out spells, so didn't know what to think of it. Earlier this month my mom had a package for me on my child support stuff, so I had to go over there and get my mom and I haven't talked AT ALL since Thanksgiving, so she didn't know of any of this stuff, etc. While I was there to get my mail from her we talked for a bit, it was actually a pleasant time, so I told her about all that was going on with the kids, what was going on with Mikaila starting therapy, my health issues and how they were resolved, and indulged her in some of the points of Mikeal's new issues. I left her place scared out of my gourd because she was able to tell me that a lot of what I had described about Mikeal was quite similar to my dad's starting issues. In case it's not known my dad had a heart condition that he had all of his life, but it was never detected until he'd undergone some serious tests, at age 32 when he had his first major heart attack. He died at age 44 from heart related issues and cancer.

Today I was called about the results of his blood work. The nurse said that Mikeal's blood levels and thyroid levels were low, so want to start him on a thyroid medication and to check back in 6 weeks for more blood work. Of course we're going to be moving during this time so I'll have to reschedule with a cardiologist in our new area and a doctor there for the follow-ups...

I went ahead and googled a bit to get more information...

BUT the information I got doesn't seem to really "fit" Mikeal...the information mentions things like stunted growth - he's in the 95% for both height and weight - and learning problems - he's in 2nd grade, top of his class, doing most things at a 4th-6th grade level - being the two big "clues" that there may be something going on. Other things mentioned were an increased sensitivity to cold...I have to FIGHT with him to put a coat on, and it's a battle to get him to wear gloves and a hat, even when it's only in the single digits outside and he'd play outside all day in such temps if I let him. It did mention fatigue, but he sleeps from about 8pm until 6-8am (depending on if he's trying to get out of riding the bus to school). Other things that were mentioned were autoimmune disorders such as Graves disease and Hashimoto thyroiditis or associated with diabetes and celiac disease.

I just feel a bit overwhelmed with it all. :sigh: Supposedly the nurse is going to give me a call back later, after she's done seeing patients, to answer my questions (I hope) but I don't feel really all that "great" about getting to the probable cause of Mikeal's recent black out spells... :bag: that or maybe I'm just a bit disappointed that it came back with something I wasn't expecting, instead of what I was preparing myself to hear.

And now I'm full of every sort of question about this, follow-ups, ways to check for maybe one of the other things as being the cause, etc...and feel like I'm going to be brushed off...I'm not fond of the nurse because at Mikeal's last well check-up I had mentioned some things that seemed a bit "off" about Mikeal and she blew it off as just "normal" 7 year old boy stuff. I feel awful now for just rolling with it because Mikeal has never been able to be classified as "normal" ...I really thought that people were exaggerating "terrible twos" because Mikeal was a blessing, and his 3 year old year was only really terrible for about a month...Mikaila has given me a whole new take on "normal"...but Mikeal, no.

And now having googled, and thinking more about it, the concerns I'd brought up with her, back in August, actually match more with the information I've ran across with my google searches. But because she said these were normal things I let it go and didn't pay attention to it anymore as a concern.



So since starting to make that portion of the post I have talked to a nurse at his doctor's office.

I asked her about the possible cause, specifically the auto immune disease possibilities & diabetes, she reassured me the the only "not good" or concerning parts of the blood tests were his low red blood count (RBC) & low thyroid levels, so he JUST has thyroid problems, RBC should go back up when his thyroid levels go up on the meds. He has to take the med daily then retest in 6-8 weeks to make sure the meds are a high enough dose, etc. She said it is most likely hereditary as his bio father's side has thyroid issues everywhere. Also because it was caught in "later" childhood and caught in its early warning stage phase he should not have any permanent damage...such as newborns can have thyroid issues and if untreated or caught later could cause permanent brain damage. If his issues were to go undetected and untreated into adulthood it could cause a lot of issues as well, such as heart problems, weight issues, behavioral issues, and academic problems..where he's excelling now he could be way behind in a few years.

Treatment is just a pill a day and regular blood work, most likely for the rest of his life.

For more information on Hypothyroidism in children I found this website to be quite informational.

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